Thursday, 10 April 2025

Health and care data

In 2015, the Qiy Foundation came up with a solution for the exchange of validated or verifiable health and care data under the control of patients whose data it concerned. The Dutch Health Ministry contributed financially to the solution.

The solution is relatively simple and elegant:

  • A virtual network, referred to as the Qiy Trust Network, would be built on top of the existing internet,
  • An independent organisation ( i.e., the Qiy Trust Framework Authority) would decide, on the basis of fair reasonable and nondiscriminatory criteria (FRAND), which organisations and applications could connect to the network,
  • Any organisation or application that would subscribe to the rules established by the Qiy Trust Framework Authority would be able to connect,
  • All connected organisations and applications would be able to access data, albeit only with parties connected to the virtual network,
  • Any exchange of data between connected parties would be controlled by the patient whose data were to be exchanged,
  • Individuals would connect with any compatible application of their choice (i.e., any application respecting the rules set by the Qiy Trust Framework Authority),
  • Data would remain at the original source, could only be viewed and no copies would be made

This solution would guarantee that the accuracy and completeness of the data would be controlled and guaranteed by the authentic source. This would guarantee the necessary trust.

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